Finding a Diagnosis

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Quest Podcast: Invisible People: Making the Rare Seen

By MDA Staff | June 6, 2025
3d illustration showing molecules passing an ion channel in cell membrane
Blog Post

Simply Stated: Updates in Ryanodine Receptor 1-Related Disorders (RYR-1-RD)

By Sujatha Gurunathan | May 29, 2025
Illustration of the neuromuscular junction, where nerves send signals to muscles.
Featured Article

Understanding Congenital Myasthenic Syndrome: Causes and Treatments

By Justine Savage | May 23, 2025
doctor's hands displaying medical icons on white background
Blog Post

Why Multidisciplinary Care for ALS Yields Better Outcomes

By Chris Anselmo | April 25, 2025
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MDA Ambassador Guest Blog: How Genetic Testing Helped Us Feel Empowered

By Jessica and Mark Lennox | April 18, 2025
Degradation of motor neurons, conceptual computer illustration. Motor neuron diseases are a group of neurodegenerative disorders including amyotrophic lateral sclerosis, progressive bulbar palsy and other. Amyotrophic lateral sclerosis, also referred to as Lou Gehrig's disease is the most common of the motor neuron diseases. Nerve degeneration and restricted production of the neurotransmitter dopamine results in deterioration of muscle tissue. This debilitating disease is characterized by rapidly progressive weakness, muscle atrophy and twitching, muscle spasticity, difficulty speaking (dysarthria), difficulty swallowing (dysphagia), and difficulty breathing (dyspnea).
Blog Post

Simply Stated: Updates in Neuromuscular Junction (NMJ) Disorders

By Sujatha Gurunathan | March 31, 2025
Blog Post

Celebrating 25 Years of Impact: MDA’s Wings Over Wall Street Gala Honors Leaders in ALS Research and Advocacy

By MDA Staff | March 16, 2025
Illustration of a male doctor seated at a desk and a female patient seated across from him in a power wheelchair.
Featured Article

Why You Should Practice Shared Healthcare Decision-Making

By Meredith Landry | February 28, 2025
A family of four, consisting of a mother holding a toddler boy and a father holding his daughter’s hand, poses in an outdoor setting.
Featured Article

4 Key Ways to Support Siblings of Kids with Neuromuscular Diseases

By Amy Bernstein | February 28, 2025
Black and white photo of Paul Cohen in a suit jacket and tie sitting in a desk chair
Blog Post

MDA’s Origin Story: A Grassroots Legacy

By MDA Staff | February 19, 2025