MDA Ambassador Guest Blog: How Making an Impact Renewed My Purpose After FSHD Diagnosis

Ranae Beeker, who is in her late 60s, has found her greatest joy in her roles as a mother to Alethea and Gavin, and as a Gramma to Eilif and Zuzu. Ranae’s journey to diagnosis was not without its challenges, as she underwent three misdiagnoses before finally finding answers at Johns Hopkins. where doctors confirmed…

The Joys (and Lessons) of Fatherhood from MDA Ambassadors

As every father knows, parenthood is an incredible journey filled with joy, challenges, victories, growth, and love. For dads living with a disability, raising children sometimes requires extra patience, resilience, and adaptability. In beautiful synchronicity, those very traits are often strengthened through daily life with a disability and serve as an asset to parenting, providing…

In Case You Missed It…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities. With so many valuable…

Quest Podcast: Invisible People: Making the Rare Seen

In this Quest Podcast episode, we chat with a former pharmacist turned singer/songwriter who lives with Generalized Myasthenia Gravis. Dania Quill has devoted her time and expertise to create inclusive spaces for those with disabilities and deliver advice, inspire action, and make us feel closer through song while sharing stories of resilience and positivity.  While…

MDA Ambassador Guest Blog: How My MG Journey Has Shaped Who I Am Today

Courtney B. is a passionate advocate for living life to the fullest despite the challenges that come with chronic illness. A high school senior from Indiana, she is an early graduate, a cheerleader, a lifeguard, and a law intern — all while managing the complexities of multiple health conditions, including myasthenia gravis. After being told…

Accessible Air Travel Is Ready for Takeoff. Can It Avoid Turbulence?

Updates on recent policy and rule changes to make air travel safer and more accessible for people with disabilities.

My Father’s Journey with ALS

Father’s Day can be a beautiful celebration — but also a tender time for many. For those whose fathers are no longer with us, this day may carry sorrow along with sweet memories. At Muscular Dystrophy Association (MDA), we support the community with those feeling that loss, and offer our empathy, love, and resources. This…

Simply Stated: Updates in Ryanodine Receptor 1-Related Disorders (RYR-1-RD)

RYR-1-Related Disorders (RYR-1-RD) are a group of rare, inherited muscle disorders caused by variants in the RYR1 gene. This gene encodes the ryanodine receptor type-1 (RyR1) protein, which is important for muscle function and the ability of muscles to contract. People with RYR-1-RD experience muscle weakness, and may exhibit a variety of other symptoms, including a…

Speech Devices Improve Communication When ALS Affects the Voice

Communication devices are crucial technology for people with ALS, or Lou Gehrig’s disease, when their speech declines.

Accessible Travel on a Budget: Smart Tips for Exploring Affordably

Travel with a disability doesn’t have to be expensive. Follow this guide to discover accessible, budget-friendly adventures worldwide.

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities. 

QUEST PODCAST

The Quest podcast, proudly presented by the Muscular Dystrophy Association, is part of the Quest family of content. Hosted by Quest Editor-in-Chief, motivational speaker and writer Mindy Henderson.

Episode 53- Invisible People: Making the Rare Seen

In this Quest Podcast episode, we chat with a former pharmacist turned singer/songwriter who lives with Generalized Myasthenia Gravis. Dania Quill has devoted her time and expertise to create inclusive spaces for those with disabilities and deliver advice, inspire action, and make us feel closer through song while sharing stories of resilience and positivity.  While…

Episode 52- Defending Medicaid with the MDA Advocacy Team

In this Quest Podcast episode, we chat with Joel Cartner, MDA’s Director of Access Policy, and Jori Houck, MDA’s Manager of Advocacy Engagement. They join us to share the most recent updates and information about Medicaid benefits, current legislative efforts and what MDA’s Advocacy Team is doing to protect those efforts, and how you can…

Episode 51- Finding Joy in the Midst of Change

In this Quest Podcast episode, we chat with MDA Ambassador Jess Westman about embracing individuality and finding joy in our lives as paths and priorities change. The activist, actor, composer, author, and podcaster has devoted his career to providing joy and laughter to others and finds personal fulfillment through his faith and advocacy. Jess joins…